Who We Are |
We were born and raised in Southwestern Pennsylvania, which is where we decided to put down our family roots as well. Our home is shared with our two dogs who are our beloved companions. Daniel John was our first child and will always hold a special place in our family, home, and hearts. Daniel will forever be our first born and the baby who gave us faith and hope.
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Why We Care |
Our faith guides us through our life and remains our foundation especially in the most difficult times. We want to provide a website with information about our experience with thanatophoric dysplasia. We were frustrated on how little was published about it online when we got Daniel's diagnosis and began searching for information. We also want to provide a voice for parents who have experienced a neonatal death because it is difficult to fully understand the devastation until you go through it.
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